Tag Archives: Autism

Death Of An iPod And The Comfort In Specific Objects

Recently Sarah’s beloved sixth-generation black 80GB iPod Classic died.

This wasn’t just a loss because of the difficulty in trying to find some new surrogate device, it was a loss because the iPod represented a specific type of comfort object for her.

Sarah explained why in a piece for Vox’s The Goods section.

To read it go here.

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Critics of Hannah Gadsby Don’t Understand Autism

When comedian writer Hannah Gadsby debuted her new work Douglas it was meant to provide a lens into her world of high-functioning autism.

Predictably, some critics didn’t get it.

Sarah explained how these critics missed the point in a piece on Medium.

Read it by clicking here.

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Fake Autism Treatments Are Both Dangerous And Insulting

Despite being thoroughly scientifically debunked, there continue to be be substantial numbers of parents who hold peculiar beliefs related to a) the causes of, and b) cures for their children’s autism.

In a piece for Vox’s First Person essay section Sarah explained why this sort of thinking is both dangerous and insulting.

To read the piece go here.

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Why 36 Is A Dreaded Number For Autistics

When Sarah turned 36 it was less a celebration than an acknowledgment of a morbid milestone. That’s because according to the American Journal of Public Health 36 is the average life expectancy for autistic people.

Sarah wrote about this for Vox.

To read the story go here.

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Imagining A Fuller Spectrum Of Autism On TV

Julia, the autistic Muppet.

Julia, the autistic Muppet.

Autism is currently enjoying an unprecedented wave of popularity in film and television. From educational programming to tent-pole blockbusters, new stories have been breaking boundaries, warming hearts, and raising awareness around the neurodevelopmental condition, which is currently diagnosed in one in 68 children. Once relegated to glorified props in prestige Oscar-bait like Rain Man, autistic characters can now be gun-brandishing action heroes, charmingly horny teenagers, and progress-making muppets.

Still, while fictional autistics are being enthusiastically embraced by non-autistic artists and viewers alike, their reception among real-life autistic people like me has been far more ambivalent. Atypical and The Good Doctor both offer portrayals of brilliant young men on the spectrum, and both shows have their supporters among autistic critics and fans. I’m genuinely excited about Sesame Street‘s Julia, a four-year-old autistic muppet, and the positive influence that her visibility will have on the next generation. In general, though, these explicitly identified characters rarely become as popular as the other characters that we’ve claimed for ourselves.

Faced with a climate where most mainstream portrayals of autism are crafted almost entirely by non-autistic people—often seemingly for a non-autistic audience—autistic people have been forced to get creative in our search for meaningful representation. Some, like autistic authors Rachael Lucas, Helen Hoang, and Corinne Duyvis have successfully created their own characters and stories in books like The State of Grace, On the Edge of Gone, and the forthcoming The Kiss Quotient. Many more have taken to blogs and social media to offer armchair diagnoses about already existing characters, discussing why we think they might be one of us. These readings are called “autistic headcanons”—the process of specifically adding autism to our personal understanding of a character, all in the context of the story.

As an autistic writer who spends a lot of time online, I find the act of forming and discussing autistic headcanons to be a fascinating look into the way that autistic people can use pop culture to better understand ourselves and the world around us. What I find most interesting, though, is how little overlap there is between the characters that are ostensibly created in our image by others, and the characters that we choose for ourselves.

An enthusiasm for headcanons is not, as I’m sure many non-autistic people might suspect, a desire to glamorize our condition, nor a symptom of our deficient empathy or theory of mind. Whenever there’s a chasm between conventional assumptions about autism and the beliefs of self-advocates, there’s a tendency for a certain segment of the neurotypical population to blame the discrepancy on autism itself. But that argument is often easily refuted by the content of the autistic headcanon discussions themselves. Autistic people aren’t gravitating toward certain characters simply because we are looking for a very specific recreation of our own experience on the spectrum. We understand that people experience the world differently, and that each autistic individual is unique—and it’s that range of experience that we’re longing to see better represented on screen.

As prevalent as autism has become in film and TV lately, it still tends to look, sound, and behave a certain way. With the exception of Sonya Cross (Diane Kruger) in The Bridge and Wendy (Dakota Fanning) in the recently released Please Stand By, these characters are almost invariably young men. With the exception of Billy (R.J. Cyler), the Blue Ranger from 2017’s Power Rangers, they’re almost exclusively white. Heterosexuality, cis-genderhood, and savantism are all disproportionately represented. Most of these characters appear to be constructed from the same checklist of common symptoms: no eye contact, a flat-affect voice, and generically awkward body language.

Cherry-pick a few posts on blogs or Tumblr accounts like “Autistic Headcanons” and “Your Faves Are Autistic,” though, and you’ll soon glimpse a much broader spectrum of identities, personalities, and experiences. Claiming Holtzmann — Kate McKinnon’s character in Ghostbusters, for example — allowed autistic fans to discuss everything from her sensory-friendly wardrobe choices to her echolalia-like speech patterns to her queerness. Analyzing the physicality of characters as diverse as Ren McCormack from the original Footloose, South Park‘s Kyle, and Disney’s Snow White brings a much broader view to the kinds of repetitive movements that autistic people employ to stim. Star Trek: Discovery‘s Michael Burnham, a human with Vulcan training, has recently struck a chord with autistic people who have emotions, but sometimes struggle to process or express them. Headcanon after headcanon, autistic people are demanding—and envisioning—more from an industry that’s increasingly profiting from our lives.

In a 2015 post titled “A Headcanon Named Autism: In Defense of Finding Our Own Representation,” the anonymous blogger Feminist Aspie wrote:

I want to see a world where books and TV shows and films depict autistic people of color, LGBTQIA+ autistic people, autistic women, autistic people with other disabilities, autistic people who can pass for neurotypical and who can’t, autistic people who are verbal, non-verbal, partially verbal, autistic people with all kinds of special interests, autistic people who use special interests in their work and those who don’t, autistic people who are hypersensitive and hyposensitive and sensory-seeking, autistic people of all ages and all occupations, autistic heroes, autistic villains, autistic geeks and autistic sports captains and everything in between, with good qualities and flaws that are related to autism and those that aren’t related to autism at all—realistic, multi-dimensional autistic characters that don’t feel hollow or like the butt of a joke. And until that’s achieved, autistic media consumers everywhere will keep working our headcanon magic.

Whether or not pop culture can outgrow the need for autistic headcanons is largely dependent on what non-autistic people — the other 67 in 68 — genuinely think about us. If we are, as I’ve argued before, little more than a challenge or accessory for neurotypical artists and a prop for neurotypical audiences, then their autistic counterparts must continue to forge our own path. If the current wave of autism entertainment is just the start of a greater public hunger for more and better autism representation, then the rest of the world will have to start making more space for a wider range of autistic people on both sides of the screen. If we can expand the conversation and the vision for autistic characters when armed with little more than existing properties and Internet access, imagine what we could do with our own characters and the means with which to share them.

This story was originally published February 22, 2018 via Pacific Standard

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Filed under Films, Health, Politics, Television

Real Autism Explained, For Hazlitt

This past summer Sarah wrote an essay for literary site Hazlitt exploring what real autism was like.

The story ended up being one of the site’s most read throughout the year.

To read the full piece head over to Hazlitt by clicking here.

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Not Hiding Autism With CBC’s Now Or Never

Sarah was on the CBC radio show Now Or Never to discuss the topic of not hiding one’s autism.

She did an interview with the show as well as contributing a personal essay titled, appropriately, “Why I’m Not Hiding My Autism Any Longer.”

To hear her interview and read her essay go here.

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